These devastating neuropsychiatric conditions, often triggered by infections like strep or COVID-19, can cause sudden dramatic changes in a child’s health and behaviour. Symptoms may include OCD behaviours, tics and eating restrictions, to severe anxiety, behavioural and educational regression amongst others.
The charity’s mission is to ensure that these often-misunderstood conditions are recognised, diagnosed and treated with the urgency they deserve. At its core is a commitment to education and empowerment. PANS PANDAS UK provides families with information and tools to advocate for their children in medical and educational settings. The charity also runs a network of support groups and a thriving online community, offering a safe haven where parents can share experiences and find strength in solidarity.
Crucially, PANS PANDAS UK is bridging the gap between families and professionals. Its CPD-accredited training for teachers and healthcare providers is transforming how these conditions are managed in schools and clinics across the country. By equipping professionals with this knowledge, the charity is driving a vital shift in awareness.
“Before we found PANS PANDAS UK, we were terrified and alone, watching our happy child disappear overnight. The charity didn’t just give us information; they gave us a roadmap, and a community who understood. For the first time, we felt like we had a fighting chance.”
- Parent supported by the charity
Proud to have launched the PANS PANDAS Steering Group with the support of NHS England and collaborating with stakeholders across health, education and social care, PANS PANDAS UK is striving for a future where every child receives timely, expert care, and no family is left to navigate this complex journey alone.
Learn more about their work
here.
