Meningitis Now

An example of a disease-specific patient information and support organisation

MENINGITIS NOW

Meningitis Now

About Meningitis Now


With a history stretching nearly 40 years, Meningitis Now is the UK’s leading charity dedicated to supporting people affected by meningitis – a devastating disease that can strike anyone, at any age.


The charity offers a comprehensive range of services, including a confidential, nurse-led helpline; community and peer support, connecting people who have lived through similar experiences; support for young people, who are at particular risk; bereavement and financial assistance through their Rebuilding Futures Fund; and tailored support for families, including counselling and practical help – whether immediately post diagnosis or later on and for as long as it’s needed. Meningitis Now also funds research into new and improved vaccines, aiming to prevent future cases and reduce the risk of disability. 


“Their support has been invaluable for my family. They made me feel like I wasn’t alone on this journey – I was given hope and understood. I often wonder how I would have coped without the support of Meningitis Now.” 

- Family supported by the charity


Another individual reflected, “When I first came out of hospital I didn’t know anybody who had had meningitis. I looked at the Meningitis Now website and a lot of the personal stories. If it had not been for Meningitis Now, I think I would still have felt very, very alone.”

- Individual supported by the charity

 

With a strong emphasis on evidence, survivor-led support, and ongoing learning, Meningitis Now plays a crucial role in breaking cycles of harm and helping families heal and thrive together, while striving for a future where no one in the UK loses their life to meningitis. 





Why we support Meningitis Now


The Foundation champions charities that are the leading providers of specialist information and support for people affected by specific diseases or conditions. We have supported Meningitis Now several times for various services including the helpline, community support, and medical research. 


Meningitis Now is an accredited Trusted Information Creator for patients and those who care for them.


It also invests in medical research to advance diagnosis, prevention, and new treatments for meningitis. Although The Foundation is no longer involved in funding medical research, we recognise the value of research-focused charities that belong to the Association of Medical Research Charities. These organisations maintain rigorous standards in research funding, and their work also helps to drive meaningful improvements in healthcare delivery for those affected right now.


Learn more about their work here.

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